The Cornelia de Lange Syndrome Foundation

Founded in 1981, The Cornelia de Lange Syndrome (CdLS) Foundation' mission is reflected in its slogan: Reaching Out, Providing Help, and Giving Hope. We have served individuals with CdLS and their families since 1981. We distribute a number of publications to families and professionals caring for individuals with CdLS, as well as host meetings and conferences where researchers and families can meet to exchange information. We also act as a facilitator between families and professionals, utilizing a team of professionals who lend their expertise to those caring for an individual with CdLS.

http://www.cdlsusa.org/