Dystrophic Epidermolysis Bullosa Research Association of America (debra of America)

The Dystrophic Epidermolysis Bullosa Research Association of America (debra of America), is the only national non-profit that provides all inclusive care to those with Epidermolysis Bullosa (EB). Our mission is to fund research and provide free services and programs for those with EB - The Worst Disease You've Never Heard Of. EB is a rare, connective tissue disorder with many genetic and symptomatic variations that affects 1 out of every 20,000 live births in the United States. All of its forms share the prevalent symptom of extremely fragile skin that blisters and tears with any friction or trauma. The list of secondary complications and illnesses can be long as every internal organ and bodily system can be affected by the disorder.

http://www.debra.org/