Angelman Syndrome Foundation

The Angelman Syndrome Foundation (ASF) works to advance the awareness and treatment of Angelman Syndrome (AS) through education and information, research, and support for individuals with Angelman Syndrome, their families and other concerned parties. ASF is a national organization dedicated to helping families, care providers and medical professionals arm themselves with as much helpful information about Angelman Syndrome as possible. AS is a neuro-genetic disorder. Characteristics of AS include: developmental delay, lack of speech, seizures, and walking and balance disorders. Individuals with AS will require life-long care. The Foundation sponsors AS research through grants to researchers pursuing promising avenues of discovery. Since 1996, ASF has funded research grants totaling over $2.5 million.

http://www.angelman.org/